Excerpt from the
WSJ August 31st 2010
It's a simple step, but one many doctors forget to remind
patients to take: Wear a medical-alert bracelet.
A growing number of American adults and children face complex
medical conditions like heart disease and diabetes. They may
have drug or food allergies, suffer from disorders like autism,
or take medications like the blood thinner coumadin that medical
staff should know about in an emergency.
New bracelets and other medical-identification systems can
fill in first responders on practically a patient's complete
health history. They're a far cry from the simple identification
bracelets of the past, which with a few engraved words informed
medics that a person was, perhaps, allergic to penicillin.
They can steer first responders to a secure website or toll-free
phone number, or initiate a text message, to get the medical
and prescription history of a patient who may be unconscious
or unable to talk about their condition.
Of course, wearing the traditional clunky metal medical-alert
bracelets might be a turnoff to some, and too visible a reminder
of a disease or condition. That's one reason a number of jewelry
companies make bracelets, necklaces and watches that look
like real bling—Tiffany & Co. has a gold bracelet
for $2,250, for instance—and some pendants can easily
be hidden under clothes.
But unless these are linked with membership to a medical-information
service, such as the nonprofit MedicAlert Foundation, emergency
responders' knowledge will be limited to what's engraved on
the accessory. People who don't want to wear jewelry can carry
a specially marked USB flash drive loaded with emergency data
that medics can read from any computer in an emergency. Whatever
identification system is chosen, doctors say, it should provide
a way for responders to access as much information as possible
quickly.
"Many patients have situations that are so much more
complex than just the penicillin allergy that can be noted
on a bracelet," says Robert Pearl, chief executive of
the Permanente Medical Group, part of nonprofit health system
Kaiser Permanente. "We also have to look for drug-drug
interactions, drug dosages, or compare an old EKG against
a new one if you are having chest pains," he says. Kaiser
last year began offering members in Northern California a
$5 flash drive loaded with personal information that can be
regularly updated from Kaiser's electronic medical-records
system.
As the recipient of a bone-marrow transplant for leukemia
18 years ago and three related procedures since then, I recently
learned the hard way that I should be wearing a medical-identification
bracelet myself. One morning in May I ended up in the emergency
room after an internal injury resulted in heavy blood loss.
When I was told I was going to need a blood transfusion, fortunately
I was alert enough that a red flag went up in my head.
People who have received a bone-marrow transplant, or are
in treatment for blood cancers, typically need a form of blood
treated with radiation to kill off certain white blood cells
that can cause a potentially deadly reaction. My husband called
one of my transplant doctors to confirm this, and the transfusion
was able to be put off a few hours until irradiated blood,
which isn't always readily available, could be located.
During an annual checkup last month at Seattle's Fred Hutchinson
Cancer Research Center, where I received my original transplant,
I informed my doctors about my emergency transfusion and they
suggested wearing a bracelet in the future. Though transplant
patients are told after discharge that they should receive
only irradiated blood, the center is now formulating a policy
to also advise them to wear a medical-alert bracelet.
Anyone with a medical condition that would not be obvious
to medics or doctors if they were unable to communicate should
consider some form of medical-identification program, says
Alfred Sacchetti, a member of the American College of Emergency
Physicians who worked with MedicAlert on guidelines for children's
emergencies. Dr. Sacchetti, an emergency physician at Our
Lady of Lourdes Medical Center in Camden, N.J., says he often
encounters children with complex medical conditions like endocrine
disorders whose parents say they were never told their child
should wear a bracelet.
Christie Iannucci, Dr. Sacchetti's 28-year old daughter, has
worn a MedicAlert bracelet that says "heart disease"
since she was in fifth grade. Ms. Iannucci, a teacher in Medford,
N.J., says in the event of an emergency, first responders
need to know that her heart rate, which might not sound normal,
is normal for her. To dress up the metal bracelet, she says
she wears it with her grandmother's diamond tennis bracelet.
Engraved on bracelets issued by MedicAlert are a patient's
member number and a toll-free number to access a 24/7 hot
line for information. The service costs adults $39.95 for
the first year and $30 annually after that; children's fees
are less. MedicAlert has added services like notifying family
members in an emergency.
Ramesh Srinivasan, MedicAlert's executive vice president,
says the organization has seen a growing number of parents
signing up kids with food allergies and autism spectrum disorders.
There is also interest in bracelets that say "no known
medical conditions" so treatment won't be delayed in
an emergency, as well as more demand from younger adults who
are active athletes with medical issues, he says. Nearly half
the group's 2.3 million U.S. members are over 65.
Privacy is a concern to some people considering wearing a
medical-alert bracelet. When Kaiser Permanente loads a patient's
data onto a flash drive, it encrypts the file and protects
the contents with a password.
For people whose doctors don't keep electronic medical records,
companies like MedInfoChip sell software programs for about
$50 that help consumers set up their own health records on
a computer and load them onto a USB device. American Medical
ID offers a flash drive in a dog-tag style pendant for $44.95
that can be engraved with basic medical information and loaded
with a patient's medical records.
Another program, called Invisible Bracelet, does away with
the need to wear a bracelet or carry a device. The program,
a partnership between Docvia LLC of Tulsa, Okla., and the
American Ambulance Association, a trade association, allows
members for $10 a year to upload personal medical data to
a secure website and receive a personal identification number.
Members get cards to place behind their driver's license,
key fobs and stickers that can be put on, say, a bike helmet
that show their identification number and the website address.
The program is currently available in a dozen markets and
is expected to expand. Docvia trains ambulance medics to use
the system. The website also allows medics to automatically
generate text or email messages to designated family members
notifying them where the patient is being taken by ambulance.
Brandi O'Dell, a mother of three in Tulsa, says she signed
up her husband for the Invisible Bracelet program after reading
about it on a website. She says her husband, Kyle, has a rare
blood disorder that doesn't allow his body to produce the
platelets needed to stop bleeding. "He's a country boy
and jewelry isn't his thing," Ms. O'Dell says. "It's
a relief for me to know that if he were in a car accident
the ER would have his medical history and they'd be able to
instantly text me, his parents, his brothers and my mom."
|
SOS TRIAGE
Excerpt below from Las Vegas Review-Journal
ONLINE GUY: Key information in a Flash drive with Survival
on a Stick
AL GIBES: The Online Guy
MORE COLUMNS
Discuss this column in the eForums!
TIP OF THE WEEK
SOS-TRIAGE
Gene Klein and his partners have announced a new product --
SOS-TRIAGE. The flash drive is designed to make the triage
process more efficient and thorough, as vital information
about a patient is collected and stored electronically. The
goal is to reduce the amount of duplication and paperwork
in the triage process, which will benefit the patient, Klein
said. The product will be on display during the upcoming Florida
Governors Hurricane Conference, May 23-28 in Ft. Lauderdale.
The best way survive a natural disaster or tragedy is to prepare
now. Waiting for the hurricane, fire or accident to hit could
cost you dearly, or even leave you dead.
Everyone has information that, put in the right hands, will
keep them alive or help them rebuild if they're wiped out.
Those files and bits of knowledge should be gathered, stored
securely, and kept within arm's reach. Gene Klein has just
the thing to make this possible.
"If I can get people to think about where all this paperwork
is, and put it all together, I've won," Klein said from
his Huntley, Ill., home.
Instead of having people transcribe everything into a spreadsheet
or tote a satchel of documents, Klein and his partners at
Enlightenment Inc., created Survival on a Stick (www.survivalonastick.com).
The universal serial bus Flash memory drive has room to store
vital information about an individual, including medical records;
current medications; banking, insurance and credit card information;
work history; family and emergency contacts; and vehicle and
pet records. They're the data someone would need to begin
re-establishing a functional life if everything were lost
in a catastrophic event. There's room to add photos and other
information, too.
The information is encrypted and password-protected. Only
the owner of the drive has access to the bulk of the data.
A hypertext markup language file -- "EMT-SOS-ICE-Owner"
-- is intended for use by emergency medical technicians and
contains vital medical and insurance information. It works
on any PC, Macintosh or Unix computer, although a PC is required
for initial data entry. An Internet connection is not required
to use the Survival on a Stick drive, also known as an SOS
drive.
"It's all about preparedness," said Enlightenment
Chief Technical Officer Rick Clemons, who produced the program
used for data collection and encryption. "In the EMT
business, they say there is one hour (after a trauma) that
will decide if a person is going to live or not.
"A lot of EMTs have the equivalent of a laptop computer.
All they need is a browser. There is no software to install,"
Clemons, of Las Vegas, said about the SOS stick, which is
intended to be carried on a key chain.
"If someone said, 'There's a tornado, flood, fire or
tank coming down the street,' what's the first thing you'd
grab? Your keys," Clemons said.
Klein got the idea for the SOS drive after Hurricane Katrina.
The SOS drive costs $49.99 and is available on the site or
by calling 877-552-0323.
Enlightenment (www.enlightenmentinc.com) is an American Service
Disabled Veteran company. Klein, Clemons and partner and webmaster
Eric Wahl are all disabled veterans. |